Rare Disease Day 2021 – Virtual Conference
Bringing together patients, medical experts, and advocates from around the world, our Rare Disease Day 2021 Virtual Conference highlighted the novel problems caused by the current pandemic and the benefits of international diagnostic and research cooperation for rare disease patients.
|14:00 – 14:05|| |
|14:05 – 14:15|| |
|14:15 – 15:00|| |
Panel Discussion: The COVID-19 Pandemic and its Impact on Rare Disease Patients
ALBA ANCOCHEA, CEO Spanish Federation of Rare Diseases (FEDER), member of Board of Directors, EURORDIS, Madrid
DR. LUCA SANGIORGI, ERN BOND Coordinator, Director Rare Skeletal Disorders Department, Rizzoli Orthopaedic Institute, Bologna
BEGONYA NAFRIA ESCALERA, Share4 Rare, Patient Engagement in Research Coordinator, Hospital Sant Joan de Deu, Barcelona
PROF. DR. PETER BAUER, Chief Genomic Officer CENTOGENE, Rostock
|15:00 – 15:45|| |
International Cooperation on Rare Diseases: Spotlight on Pakistan
PROF. DR. HUMA CHEEMA, Prof. emeritus Children's Hospital and Institute of Child Health, Lahore
ATIF EJAZ QUREISHI, President Lysosomal Storage Disorder Society Pakistan, Lahore
DR. JORDI PEREZ LOPEZ, Head of Patient Advice & Liaison CENTOGENE, Berlin
|15:45 – 15:50|| |
|15:50 – 16:00|| |
The event is moderated by SUMI SOMASKANDA.
The program is subject to changes. All times shown are in Central European Time (CEST).