About Rare Disease Day at CENTOGENE
Every year throughout the month of February, CENTOGENE takes the opportunity to enhance the visibility of rare diseases. Rare Disease Day is a special occasion to bring together individuals to raise awareness and advocate for faster diagnosis and easier access to innovative treatments for all those affected by rare diseases.
CENTOGENE’s Rare Disease Day 2021 (www.RDD2021.eu) campaign promoted our overall goal – to raise awareness amongst policy makers, public authorities, researchers, health professionals, and the general public. This year’s Rare Disease Day specifically focused on the novel problems caused by the current pandemic and the benefits of international diagnostic and research cooperation for rare disease patients.
We are thankful to those who joined us and the global community on RDD2021, – increasing public knowledge, while encouraging physicians and decision makers to address the needs of those living with rare diseases.
CENTOGENE engages in diagnosis and research around rare diseases transforming real-world clinical and genetic data into actionable information for patients, physicians, and pharmaceutical companies. Our goal is to bring rationality to treatment decisions and to accelerate the development of new orphan drugs by using our extensive rare disease knowledge, including epidemiological and clinical data, as well as innovative biomarkers. CENTOGENE has developed a global proprietary rare disease platform based on our real-world data repository with over 3.6 billion weighted data points from approximately 595,000 patients representing over 120 different countries as of September 30, 2020.
he Company’s platform includes epidemiologic, phenotypic, and genetic data that reflects a global population, and also a biobank of these patients’ blood samples. CENTOGENE believes this represents the only platform that comprehensively analyzes multi-level data to improve the understanding of rare hereditary diseases, which can aid in the identification of patients and improve our pharmaceutical partners’ ability to bring orphan drugs to the market. As of September 30, 2020, the Company collaborated with over 40 pharmaceutical partners covering over 45 different rare diseases.
Frequently Asked Questions
How can I attend CENTOGENE’s RDD2021 as press?
Please email press(at)centogene(dot)com for more information.
How can I request an interview with someone at CENTOGENE’s RDD2021?
Please email press(at)centogene(dot)com with the the subject line, “Interview Request.”
How can I see the films from the RDFF in advance as press?
Please email contact(at)rdff(dot)eu with the the subject line, “FilmFestival Media Request.”